September 22, 2014
West Palm Beach, FL
Thank you so much Suzanne Boyd and CBS 12 crew for allowing Team Tommy to participate in the CBS 12 Live Tweetup. We had such a blast live tweeting with the newscasters and viewers, along with promoting awareness for Team Tommy and Myositis disease during Myositis Awareness Month! We truly are so grateful for the opportunity and look forward to participating in more events!
October 20, 2013
The Myositis Association Annual Conference
Truly enjoyed attending the 2013 TMA Patient Conference. Met amazing, determined, caring, generous and strong people battling Myositis disease and their caregivers/support team.
We had an opportunity to hear presentations and talk with world class Myositis specialists from throughout the world. We are excited to have gained so much knowledge that we can share with our Board and others in our efforts to raise awareness for Myositis diseases.
A huge thank you to Bob Goldberg and his team at TMA (National Myositis Association) for hosting a fantastic conference.
Throughout the conference we heard a message of hope, determination and drive. Therefore we leave you with the following quote for each and every person who is putting forth great effort to fight Myositis disease, help their loved ones, conduct research to better understand the disease and bottom line....... are passionate about making a difference.
Learn from yesterday, live for today, hope for tomorrow.
The important thing is not to stop questioning.
Laurie & Dana on behalf of the Team Tommy Foundation
Posted September 9, 2013 at 9:10 a.m.
Team Tommy Foundation - Volunteers aim to kick Myositis disease to the curb
By Wendy Dwyer
Even when he was painfully ill battling a disease that was sudden and fatal, Tommy Worthington never stopped caring about other people and showing his capacity to love.
Though in the hospital and bedridden, the St. Lucie County Sheriff’s Deputy found a way to surprise his wife with lovely roses to celebrate what would be their final wedding anniversary. This was the Tommy who saved lives and positively impacted the community during his time on earth, and it’s the same Tommy whose foundation and spirit continue to provide support, comfort and assistance to others who are traveling the same frightening road he traveled before losing his battle with Myositis last year.
At 39, Dep. Thomas Worthington was in tip top physical condition, a regular for workouts and exercise. So when he began to suffer from a lingering rash that developed into some muscular aches, he was more surprised than anyone else to hear a diagnosis of Myositis.
Neither Tommy nor his family had ever heard of the illness, which affects 50,000-75,000 people in the United States every year. Not easily diagnosed, this incurable muscle disease can affect different areas of the body, and in Tommy, the disease struck fast and with a horrible vengeance. Though surrounded by loving family and being treated by the nation’s finest specialists and support staff, Tommy Worthington succumbed to myositis just six-weeks after his diagnosis. And while his loss is still a raw and painful wound for his family to bear, Tommy’s wife, Dana and his sister Laurie Boyer are dedicated to keeping Tommy’s memory and caring spirit alive by helping others who may be facing a diagnosis of myositis.
On Sept. 21, Team Tommy Foundation will host a Kickball Tournament at Sandhill Crane Park in Port St. Lucie. Eight teams, consisting of the St. Lucie County Sheriff’s Office, Port St. Lucie Police, St. Lucie County Firefighters, St. Lucie County teachers and friends and family, will run the bases in a no-holds-barred kickball match to raise funds for families with myositis diseases, to help finance research, and to promote awareness of this little-known and deadly illness.
Play will begin at 9:30 a.m., and while there are no more openings for teams, there are lots of spots for spectators. If you can’t stand the heat at the field, join the entire party as it heads to Jensen Ale House at 2 p.m. after the tournament ends for awards, raffles, food and celebrations, with a portion of those proceeds being donated directly to Team Tommy Foundation. There will also be educational materials on site to help you learn more about myositis, an incurable autoimmune disease that is often misdiagnosed as fibromyalgia or rheumatoid arthritis.
To learn more about the Kickball Tournament or Team Tommy Foundation, visit www.teamtommy.org.
Thank you so much TcPalm and Wendy Dwyer for publishing such an inspiring and amazing article about Tommy, his story, and allowing us to continue raising awareness for Myositis diseases!
TC Palm Newspaper Article: September 2013
ST. LUCIE COUNTY — When he was in the hospital last year, Sheriff’s Office Detective Tommy Worthington had an endless outpouring of love and support from friends, family, and community members.
So much so, that it inspired him to start his own nonprofit foundation. He wanted to help others also suffering from the disease Dermatomyositis, an inflammation of the skin and muscles.
When Worthington lost his battle last year at age 39, his family knew they had to make his dream a reality.
His wife, Dana Worthington and sister Laurie Boyer founded Tommy’s Team, a nonprofit organization dedicated to raising awareness for myositis diseases.
“His mission became our mission,” said Dana Worthington. “And when he passed, we knew we needed to fulfill that for him.”
When he was a St. Lucie County deputy, Tommy Worthington was in top physical condition. When he began to suffer from a lingering rash that developed into muscular aches, he was surprised to learn he had a form of myositis — a disease of which he’d never heard.
Since founding Tommy’s Team a little over a year ago, Dana Worthington and Boyer have been dedicated to spreading awareness about myositis, a rare auto-immune disease that attacks the muscles, lungs, skin, among many other things that assist everyday bodily functions. Myositis is the popular term used to describe a number of inflammatory myopathies, including Tommy’s diagnosis of Dermatomyositis, which affect 50,000 to 75,000 people in the United States every year.
But they’re facing an uphill battle explaining and educating others on this little-known disease.
“Derma-what? That’s what most people say when they learn about Tommy’s illness,” Boyer said. “But its encouraging how receptive and supportive people are once we share Tommy’s story.”
She and Dana Worthington try to ensure that Tommy’s story, spirit and memory affect all of their decisions when it comes to the foundation that bears his name.
“He was athletic, outgoing, adventurous, and loved life,” said his wife. “When we plan events we try to think, ‘what would Tommy love?’”
That includes events such as an upcoming kickball tournament on Sept. 21, National Myositis Day.
Teams of made up of friends, family and co-workers will run the bases to raise money for families with myositis diseases, to help finance research, and to promote awareness of the uncommon illness.
“When I think about him, I can see him smiling, because that’s what he always did, even when he was in the hospital,” said Boyer. “Seeing what’s going on and how people have come together to make an impact — he would love that.”
August 28, 2013
Sue Ellen Sanders Radio Show
Thank you so much to WPSL 1590 and the Sue Ellen Sanders Show for having Team Tommy Foundation "on air" to talk about the foundation and Myositis disease. Sue Ellen was a spectacular host and we appreciate the opportunity to educate the community about Myositis disease and Tommy's story. You can watch the 50 minute show by clicking on the arrow to start the video below:
June 12, 2013
WOW........you've done it again. Your support has helped Team Tommy Foundation have another wonderful & successful event. We had a great turnout (over 150 people) for our first Quarter Auction. We are so proud to be given a another opportunity to help raise awareness and support for Myositis diseases. We raised over $3,200 from our event. There were so many amazing donated items and vendor goods raffled off at the event. We would like to thank Patti Patti Becker for her help organizing and running the quarter auction. We thank you from the bottom of our hearts for your hard work and dedication to Paying it Forward to others. We also would like to thank the Sons of Italy for allowing us to use their hall on a Friday night for a Quarter Auction and to the following vendors who helped to make it run smoothly:
Gold Rush of America
Paracord Survival Bracelets
Thirty One Gifts
and last but not least Anthony and Diane from Warning Signs and Dangerous Graphics who presented us with custom made Team Tommy wine glasses and beer mugs. What a unique gift......we love them!!!
In addition, thank you to the following businesses for donating items for the quarter auction (please support them as they help support our local community):
Jensen Ale House
St. Lucie Draft House
Quench Your Palette
St. Lucie Lanes
Indian Hills Golf Course
Santa Lucia River Club at Ballantrae
Cakes by Michelle
Digital Memories Photography
West End Grill
Sassy Bows & Toes
Marder Dermatology - Liz Dowling
Sailfish Splash Waterpark
Daru Fitness Performance
Dr. Schwarz at River Oaks Clinic & Day Spa
Stella & Dot - Gladys Gomez
Colene O'Neill - Main Lobster Dinner for 2
Kathleen & John Melrose
Lastly, a HUGE thank you to Mr. & Mrs. Bolger and the Colorado Myositis Support Group. This phenomenal group of people partnered with us and sent us two beautiful glassblown bird feeders for the auction. They were absolutely gorgeous and we feel honored to have their support as we work to help paitents and families with Myositis disease.
May 1, 2013
Team Tommy Foundation is happy to announce our next event........drumroll please.........A Quarter Auction at the Sons of Italy in Port St. Lucie Florida. A Quarter Auction is a cross between an auction, a raffle and a home show. We are inviting men and women to come out and join us for a Friday night of fun with friends. Purchasing your paddle online for $5 reserves a seat. Bring your friends, a couple rolls of quarters and enjoy a night out. Upon arriving for an additional $5 Sons of Italy will prepare a delicious meal and there is a cash bar open as well. We have received many wonderful donated items that will be raffled in addition to items from vendors. Check out the Events tab for all of the details. Doors open at 6:00 p.m. and auction begins at 6:30 p.m. We look forward to seeing you there!
January 5, 2013
As many of you know Tommy ran the Ragnar race from Miami to Key West last year. He loved the team and it was an amazing experience. They have chosen to keep his memory alive this year as they run the Ragnar race. What an amazing team, Tardy to the Party is!! Thank you Teresa Schoemer for submitting Tommy Worthington's story and making it a spotlight in the magazine. Be sure to read Pg. 7~ The Runners Spotlight!! We love you guys for dedicating this race to him. We are also thankful for the generous donation from Team Tardy to the Party to Team Tommy Foundation. Here's the link: http://www.ragnarrelay.com/i/FLK/FLK-Ragmag-02.pdf?bcsi_scan_b188b7305b22cf96=0&bcsi_scan_filename=FLK-Ragmag-02.pdf
December 28, 2012
Putting your donations to good use
We are proud to announce that your generosity is making a difference! The money that was raised at the pub crawl will be helping people in New Jersey, Florida and throughout the United States. We are excited to announce that the money from the pub crawl has been donated to the following areas:
Sponsoring 3 people living with myositis disease to attend the 2013 Annual Myositis Patient Conference this fall
Funding research for Dermatomyositis
Funding education for physicians so they can diagnose myositis diseases faster/easier in areas where they do not come across the disease process as often
Providing financial assistance to a young girl in New Jersey who is living with and seeking treatment for Juvenile Dermatomyositis.
We are extremely grateful for your support and will continue to work hard to raise awareness for Dermatomyositis. We are planning exciting events for 2013....stay tuned for more info!
December 19, 2012
Speechless would be the best word to describe how we feel at this time! The outpouring of support for our First Annual Pub Crawl was absolutely amazing. We had a wonderful evening with everyone and am grateful for the opportunity to spread awareness and raise funds for Dermatomyositis. Due to the generosity shown by all we were able to raise over $3,000. The Ho, Ho, Ho's and Hillbillies Pub Crawl also had some outstanding outfits. We were very impressed by the costume creativity! We have to give a huge THANK YOU to our sponsors, volunteers, bars/restaurants and pub crawlers that helped to make our event a success! We have great things planned for putting the money to good use by helping others so stay tuned for more details in the near future!! In the meantime, we look forward to seeing you at our next event and please help share TeamTommy.org with friends and family so we can continue to help make a difference for those with Dermatomyositis and Myositis diseases.
December 2, 2012
Woo Hoo....As this weekend comes to a close we are exceptionally excited....why you ask???? We get to pub crawl and raise awareness & funds for Dermatomyositis in honor of Tommy Worthington next weekend!!! Below you will find the schedule for the evening and some pub crawlers "tips". You can also go to the Events tab to purchase your ticket before Saturday for $10. Save some money before the holidays and buy it ahead of time because they will be $12 at the door. We appreciate your support and look forward to hanging out with you this weekend!
November 21, 2012
All SPONSOR SPOTS ARE FILLED!!!!! Thank you to our two latest sponsors....Tommy's Elementary School friends at P.S. 64, where we grew up in New York and Tommy's friends from Spotswood, NJ where we called home after New York. Thank you for coming together to remember an old friend and continue to keep him close to your hearts. We are extremely grateful!
November 5, 2012
WOW!!! That’s all I can say about the amazing sponsors that we have received support from for our Pub Crawl on December 8th! We would like to give a special THANK YOU to the following sponsors:
• Cakes By Michelle
• Bowdoin G. Hutchinson, P.E. Engineering
• All About You Salon
• Annie Shaw Photography
• Louden Bonded Pools
• Jennifer Collett
• Maria Bordonaro
• Laura Pfundstein
• The Tax Shoppe
• Anonymous Donor
2 Sponsor Spots Left!!!
Click on the Events tab
to sign up as a $100
October 25, 2012
Many people have asked how they can help. Currently we are in need of Volunteers for the night of the Pub Crawl on December 8th. We need volunteers to work 1 hour increments throughout the pub crawl. We will need people to man the Registration tables, 50/50 raffles and help with initial set up prior to the pub crawl. We will be having a meeting on November 7th at 6:00 p.m. to go over the details and assign roles. We appreciate you. Please RSVP for the Volunteer meeting at the following site. http://www.signupgenius.com/go/60B0D45ADAE2DAB9-pubcrawl
September 25, 2012
Tunnel to Towers Run
We are getting prepared and excited for the upcoming Tunnel to Towers Run in New York City on September 30th. Team Tommy and many friends and loved ones from Florida, New Jersey and New York will be running in honor of Tommy. We are looking forward to joining a great organization , Stephen Sillers Tunnel to Towers Foundation, that honors and helps families of fallen firefighters, police officers and members of the military. You can find out more about the Tunnel to Towers Run at http://tunneltotowersrun.org/nyc_run.aspx We will post updated pictures, etc. after the race weekend....Stay tuned!
Save the Date!!! DECEMBER 8, 2012
We are excited to announce that we will be celebrating Tommy's 40th birthday with a themed pub crawl in downtown Fort Pierce called Ho, Ho, Ho's and Hillbillies! More details coming soon....follow the event on Facebook: https://www.facebook.com/#!/events/454592061252094/
September 17, 2012
We would like to thank Michelle Gonzalez and Maria Burger Martinez for putting together such an amazing event in honor of Tommy Worthington and to spread awareness of Dermatomyositis ad Interstitial Lung Disease. What better way to celebrate than to dance our butts off for 3 plus hours! It was so much fun!! We know that couldn't have been accomplished without Digital Domain and Traer VanAllan for allowing us to use their dugouts and field, DJ Brandan Brandanv Widner for the incredible music, and all of the fabulous instructors: Michelle Gonzales, Maria Martinez, Destiny Elkin, Jennie Reilly, Alison Hok, Dominic Mastropolo, Kellie Michelle, Carmen Ormaeche, Yesmina Morino, and Teri Tilton (Sorry if we missed anyone!). Whoo, you guys worked us out! Additionally, thank you Erin Lowry and Spirit Sparkles for our blinged out tops and Ink Head Graphics for the great instuctor shirts. There were many monetary sponsors whose donations are appreciated more than words can express: Joe Edge and the Tax Shoppe, Antonio Gonzalez and Extreme Barcodes, Patrick M. Gonzalez, MD, Michelle Harkins Leckenbusch and Cakes By Michelle, and Joe Santiago with Advanced Professional Services. We had lots of raffle items to give away thanks to the donations of many of our vendors and sponsors to include 2 incredible facial packages by Dr. Cynthia Rogers Dermatology, a $25 GC from Vault Denim Jeans, a $25 GC to Fibi and Co., Layers Lotion from Grace Adele- Scentsy, 3 $25 GCs from Rodan & Fields Dermatology, Fat Burning Coffee and Tea from Borescha, a 10 oz. Apothecary Candle from Tropical Kandle Kreations, and a beautiful hat from A Boutique. On that same note, we thank all of the vendors who came out and who are donating a portion of their profits: Boresha International/Stacy Braica, 31/Lauren Conigliano, Rodan & Fields/ Jeannine O'Leary, Lia Sophia/ Candy Coombs, Tropical Kandle Kreations/ Karen Dooley, Party Lite/ Jillian Jarrett, Stella & Dot/ Gladys Gomez, Vault Denim and Fibi and Co./ Jill Todd, A Boutique/Angela Conigliano, Grace Adele-Scentsy/ Patti Mac Gregor Becker and Close to my Heart/ Dorinda Rippe. We would like to give a special shout out to to all the girls from The Royal Palms who volunteered and made sure that everything ran smoothly and that all the participants were hydrated! Last but certainly not least, thank you to everyone who came out and supported our cause. This event would not have been a success without you and we love you for allowing us to share Tommy's story with you. We look forward to next event that will go toward fundraising for the organization we have started in Tommy's name. For more information visit www.teamtommy.org. We love you all!!!
September 6, 2012
This is a place to get the latest and greatest news updates about Team Tommy. In addition, it is a place to inform individuals and companies of our needs. If you are able to volunteer or donate items/services then feel free to contact us at firstname.lastname@example.org Thank you!